Tuesday, June 10, 2008

Scaling up to Universal Access

See http://www.un.org/webcast/aidsmeeting2008/index.asp?go=104 for the webcast

Margaret Chan
Predictable and sustainable funding is crucial - you cannot start a programme without commitment to ongoing funding (literally, life long). We should be looking at our strategy for the next 27 years, learning from the lessons of the first 27 years of responding to the pandemic.

Integration of health and social services once again emphasised. Over and over we hear that rather than scale down HIV services to invest in other area, why not scale up both? Surely what has been learnt about coordinating massive national and global epidemic responses shows us what we can do in mobilising resources to respond to other major health needs.

Norway
Need to catch up, scale up and sustain. We also need to link up with other health and social issues; AIDS response can be a driver towards achieving all the MDGs.

Netherlands
Need to hold governments to account - internationally holding one another accountable, and nationally Civil Society should be holding their governments to account.

USA
Need to make sure 12-16% of all funding for therapy scale ups should be for paediatric therapy - current draft PEPFAR Bill is focussing on funding therapy in these proportions. Others should be aiming for this kind of scale up.

Russia
Scaling up treatment on a three year budgeting cycle - i.e. to 2011. c$1B

UK
Need to scale up all health systems. Not just ARVs but palliative medicines, opiate substitution therapies.

Also increase health workers, with specific targets such as 2.3 nurses per 100,000 population.

UK has announced a long term financing commitment to spend $12billion up to 2015

Civil Society Hearing

See http://www.un.org/webcast/aidsmeeting2008/index.asp?go=102 for the webcast.

The main themes that struck me coming out of the Civil Society hearing are:

  • We must address factors excluding vulnerable groups from access to treatment, support and prevention, including legal restrictions that criminalise certain behaviours, certain populations and even being HIV positive. This includes lifting travel bans on HIV positive people.
  • Grace Violetta spoke passionately about the need to overcome these legal barriers.
  • Another issue highlighted was the lack of access to paediatric formulations of ARVS. Also that only 10% of HIV+ pregnant women in developing countries have access of PMTC services.
  • Impressive presentation from a 16 year old HIV+ young woman from Australia - Stephanie Reaper. Her hopes for her studies, marriage and parenthood were very moving and encouraging. Her plea for others in her situation to be allowed the same opportunities are to be taken seriously.
  • Business and labour unions need to be actively engaged in prevention, care and maintaining the rights and well being of those with HIV in the workplace.
  • Finally, a challenge. As several countries (including, as I have noted before the USA) have failed to report, we have a real gap in knowing how far off target we are for 2010. And how can we increase accountability of governments that are not democratic, when we are struggling to get democratic nations to be more accountable.

UNGASS Day 1

Opening Plenary
See http://www.un.org/webcast/aidsmeeting2008/index.asp?go=102 for webcast

Interesting that Ban Ki Moon raised (quite rightly) in his opening address the issue of removing travel bans on HIV+ people, as did Peter Piot. Had several conversations about that yesterday, and at the same time found that there are plans to lift the US restrictions within the next PEPFAR Bill - only seven conservative Republicans, lead by Senator Coburn are allegedly trying to block the PEPFAR renewal bill with wrecking amendments. But the US is not the only offender here - this is a problem both with short-term and long-term visas for the majority of nations. The Civil Society delegate is now raising the same issue. Looks like this is going to be one of the main themes this morning.

With de Cocks' statement yesterday it is also becoming clear that targeted prevention, treatment access and de-stigmatisation of vulnerable groups should be the main focus of prevention, rather than focussing primarily on general populations (although there is a strong case for maintaining prevention efforts in the wider population, as they still face risks, nevertheless outside of Africa, this is not where the epidemic is really happening). And decriminalisation of vulnerable communities and stopping treating HIV and AIDS as a separate issue, and looking at wider health and social issues are all essential steps. Encouraging to note that DFID has grasped the nettle of strengthening wider health infrastructure.

Dr Anthony Fauci raised the issue of shortage of health personnel as one of the key obstacles to Universal Access, and that wider health and social development. Will this new 'holistic' approach to HIV service development serve to strengthen wider health needs and infrastructure? It is not clear that it has been in the past, and has even detracted from other health priorities. Funders, NGOs and Governments do need to make that wider health and social infrastructure issues are addressed. Again, am encouraged that DFID at least seems to be committed to this approach.

Good to hear Fauci emphasise that we need to learn from countries where prevention has worked, and to engage with Civil Society and faith groups. And sustained, long term funding. I remain ambivalent about the money being poured into vaccine and microbicide research when so little seems to have been achieved in terms of successful prevention to date. However, if either of these approaches ever do work, they could be life savers. But it will be years or even decades and vast amounts of funding to get us to that point - so the question we should be asking is are there shorter-term priorities that should be the focus of these resources?

We are now into individual country reports and feedback. This can followed at http://www.un.org/webcast

We are now heading in to the Civil Society Hearing

Prevention Shibboleths

Had some very interesting and eye opening discussions with various people yesterday, mainly around the issues of gender, the human rights based approach to prevention, and above all the way our understanding of the epidemiology of HIV & AIDS is shifting.

Although I did not attend it, there was a caucus on gender and HIV yesterday that was well attended – by about eight times as many women as men. Like most men I had assumed that this meeting would be primarily about empowering women and tackling stigma and discrimination – areas I felt myself unqualified to contribute to, so had focused my time and energy elsewhere. My error – because of course men are a gender as well as women, and any attempt to address women's rights must address men as much as it addresses women. It shows how rapidly we have polarized debates and failed to engage one another on issues that affect us all.

For example, how can we tackle the sex industry and human trafficking head on to protect vulnerable girls and women (and some boys and men) if we do not first address male sexual behaviour? Why do men pay for sex, and are there effective strategies that can reduce this behaviour? Is criminalising buying (rather than selling) sex a more effective way forward, or does it create other problems? Models developed in countries like Sweden bear watching over the long term.

But this highlights another problem – we are concerned rightly about making sure that we target prevention on vulnerable groups without stigmatizing them, and we are rightly concerned that only effective and evidence based approaches are used. But the evidence emerging from epidemiology is showing us that human sexual behaviour and choices are vastly more complex that we had initially thought.

Firstly, an article in yesterday's Independent carried a statement from Dr Kevin de Cock admitting that the long feared generalised epidemics are not on their way. India's epidemic is focussed around the sex industry, and spreads from there to the families of the men who use female and male sex workers, but not really and further. Why? Ironically because the position of women in Indian society means it is very unlikely that woman will have one or more sexual partners outside the marriage. Likewise, China's epidemic is mostly among IVDUs or is iatrogenic – the latter creating a few large clusters that have so far failed to spread dramatically. In most of the rest of the world, HIV is largely confining itself to specific groups, not spreading significantly to the wider population.

Why? Or more to the point, why are almost all the generalised epidemics confined to Africa? No one is 100% certain, but the newly emerging picture from epidemiology is that the pattern of sexual relationships in Southern Africa in particular is what is now being called "multiple concurrent partnerships". This is where an individual will have several sexual partners in steady, long term relationships simultaneously. What is more, this is not primarily a male behaviour – it is equally common between the genders. As these are regarded as stable relationships, condom usage is low. The potential for sudden explosive clusters of new infections to occur is very high – especially as the newly infected are the most infectious – HIV can rip though a network of relationships very rapidly.

We do not know much about this pattern of sexual relationships because people seldom report that it is going on, but there is growing evidence that it does occur, although at what level is unclear. It is also apparent that due its hidden nature, this is not a pattern readily amenable to behaviour change strategies – whether getting people to use condoms or remain faithful to one partner only.

Because it seems to be most common in certain segments of certain societies there is also a political dimension here – it is hard to focus on this issue without being seen as stigmatising and even racist. So much more work needs to be done on understanding this phenomenon and seeing how we can pull together a consensus between governments and civil society on how to tackle this. And how can the churches tackle this head on within their own congregations and the wider community?

Once gain this highlights the need for wider ranging strategies that address stigma, sexual behaviour change ('zero grazing', delayed sexual debut, etc), effective use of condoms, open access to HIV testing, encouraging open, public discussion of sex and sexuality, involvement of all levels and sectors of society in communicating prevention messages, clear national leadership, etc, etc. This is what Uganda and Senegal did successfully before it became the subject of heated politicised debate and reduction to arguments over "abstinence only" versus "condoms only" programmes, and other misdirected battles over prevention ideology.

One African leader from a faith based/civil society network admitted to me last night that the prevention strategies in his country were suffering from the influence of Western donors who were pushing one ideological position or another – rather than letting his nation continue to develop their strategies based on what they know works within their own communities. We can only tackle HIV by cooperation around evidence based strategies, and letting local knowledge and understanding allow appropriate and contextualised responses to be developed from within the community, rather than being imposed by external (usually Western liberal and conservative) ideologies and funding priorities.

There will be more debate around this over the next few days

Monday, June 9, 2008

AIDS Implementers Meeting

With 2.5 million new infections a year and only 1 million more people on therapy in the last twelve months, you can see easily see that key to reaching Universal Access targets (and maintaining them - an issue that has not even begun to be addressed as far as I can see) is scaling up prevention initiatives and strategies.

Hence the welcome response from the AIDS Implementers Meeting that has just finished in Uganda. It was also heartening to know that Ian Campbell (formerly of the Salvations Army, and someone who has shown time and again just how low cost community mobilisation and empowerment has more impact than costly top down models of care and prevention) was given a chance to address one of the plenary sessions on June 4.

Again, that is what we should mean by Civil Society - the local engagement and community mobilisation. De-professionalise AIDS care and prevention, and de-mystify it. But the challenge for Christians is how we get churches to even recognise that they have a vital role in this.

Civil Society Caucus - addendum

A call has just come from the floor for a Civil Society political declaration to come out of the meeting. Particularly to focus in the issues raised below, and others being discussed (empowering women, human rights, tackling discrimination, etc, etc.). This was something that came up in 2006 - at the very least it encourages Civil Society internationally to reach some kind of unanimity and consensus to put pressure on governments.

The trouble is it that is not always possible for all of us to sign up to everything in these statements. Many faith based groups come from a quite different starting point from the human rights based groups, and while we agree with each other on many issues, there are fundamental points of departure. So we either produce a statement that not all of us can sign up to, or we end up with just as bland a statement as comes from the official consensus achieved between governments.

It looks as if this will be taken forward - more on that as things become clear.

Civil Society Caucus

Am in the Civil Society Caucus at the UN as I write.

Seems that the same heart cry to world governments is coming out from the Civil Society Caucus today - please work with us! In many countries the involvement of Civil Society is either non-existent or tokenistic. PWLHA groups and vulnerable groups are ignored, excluded or badly engaged with. Sad to say that this has been the plea for as long as I can recall - some countries are listening, but in the most affected parts of the world in particular Civil Society engagement is very poor. Despite the commitments in the Paris Declaration, a lot of programmes are note being driven by the expressed needs of Civil Society groups - especially of PLWHA and vulnerable groups.

Is Civil Society just being used as a rubber stamp - to make government policies look good to the International Community? It would seem so in many cases, and it is for the International Civil Society networks to hold governments to account for adhering to the commitments to engagement that they have signed up to. Also, Civil Society is often being marginalised by legislation that criminalises some vulnerable groups, and denies human and civil rights to those living with the virus.

Meanwhile the targets being set at each of these UN General Assembly meetings - from the 2000 Millennium Summit onwards, are not being met. The 2010 promises are in danger or being ignored now, and we are in danger of just looking to the 2015 MDGs - i.e. a way of shifting goal posts so we can overlook where we have fallen short of our aspirations. Again, this is a cause that is vexing most of the Civil Society delegation, and letters have already been written to Margaret Chan (WHO) and Peter Piot (UNAIDS) pleading that 2010 targets on Universal Access not be forgotten.

A US delegate pointed out that although the US is openly opposed to harm reduction procedures around IVDUs, in practice local groups and municipal authorities are engaging at this level. I.e. the headlines say one thing, what is happening on the ground is quite different. Something I think all of us are well aware of.

It is interesting to note that there was no US country report submitted for this meeting - at least not on the UNGASS official site (and I note, no shadow reports from Civil Society for either the US or UK this time - why I have no idea, but I wonder if Civil Society groups have lost some of their critical edge towards our governments' policies in both nations).

The UK did get a country report in, which showed a 9% growth in new infections and problems with increasing access to and awareness of the need to get tested. 31% of all those living with HIV the UK are doing so untested, and possibly in ignorance that they are at risk of being infected (in some cases). I think the UK still thinks its main role is as the second biggest bilateral donor on AIDS, but we are a way off hitting all the targets at home.

The UK does have a decent (if hard one) reputation for Civil Society engagement, although I think there are still questions to be raised about how well they are working with churches and FBOs - at a UK and at an international level. DFID is finally mentioning faith based groups in their strategic document on achieving access for all by 2010 - but how well they engage in practice is still not clear - past evidence suggests they have quite a way to go, but also that they may have made some progress in the last couple of years.

The meeting is about to break now... more later.